7/31/08

Thursday's Thankful Thirteen

I mentioned on Sunday that I would like to start a weekly post about gratitude. So, here it is: Thursday's Thankful Thirteen. Every (hopefully) Thursday I will post 13 things that I am grateful for either from the week past or in my general life.

I encourage you to do the same. Be sure to let me know if you have decided to join me by leaving a comment and be sure to let others know where you learned about it!

1) I am grateful that our home was not affected (Jessi, is it Affected or Effected?) by the tornado that hit our town.

2) I am grateful for "Nana Sue" (Dad's wife) and that she is always willing to accompany me to the movies with the boys. That way Z is able to enjoy the movie while I chase A around the theater.

3) I am grateful for amazing friends that reply to my INSANE text messages late at night telling me that I am a good mother and trying to help me get my kids bed by offering to discipline them for me over the phone.

4) I am grateful that my children are healthy, that we have not had to make any serious trips to the ER since February and that A's MRI came back a BIG FAT NEGATIVE!!

5) I am grateful that I have a thriving business no matter how exhausted I am at the end of the week...because come October when all my summer clients leave I will need to remember this. I am also grateful that I DO NOT BELIEVE in "The Secret" or else I would think that I caused my client to no show on me today.

6) I am grateful that idiots like Michael Savage exist in this world to help raise Autism Awareness.

7) I am grateful for Rec and School. Without the two programs I would not have survived this summer...and we still have over a month left.

8) I am grateful that I was able to spend an evening with my great friend Caryn (without children), enjoy some good food, some great drinks and so wonderful conversation!

9) I am grateful for Peggy. She has helped Zach and me through many tough times and has listened to me for the past three weeks when she didn't have to.

10) I am grateful for C, our babysitter. She is great with the kids, ever available and doesn't charge me too much! And (she doesn't know it yet) but she is going to watch my girlfriend's baby so she can get a massage next week from yours truly.

11) I am grateful that none of us got sick even though the beach we spent Tuesday at was closed on Wednesday for high bacteria levels...even here in Crazy Town you SHOULD NOT drink the water!!

12) I am grateful that Z told me that my old phone I gave him was still receiving my texts (how I do not know because there is no SIM card in it and the phone was deactivated back in November). And I am grateful that the texts I was worried about him seeing were not on there...it seems to pick and choose which ones it receives (there were a few that Insane Mama would be proud of.

13) I am grateful for the blogosphere. Again, sounds silly, but no matter what I post about I get so many great responses. It always amazes me that people from around the globe (I have had visitors from Brazil, The Middle East, Europe, China, Turkey, Columbia, Italy, Greece, Australia, Iceland, Canada, Hungary and, of course, USA) are so supportive of everything you do.

So there it is. My first Thursday's Thankful Thirteen.

What are you grateful for?

7/30/08

Yesterday's Post

What an overwhelming response to yesterday's post! While I want to respond to each one of you individually, there is so much to say...I think it would be done better in blog form.

Molly, you are absolutely right. I am not sure if there is an epidemic or if autism is just being recognized better and easier. A would not have been diagnosed 10 years ago with autism because his "symptoms" are so much less severe. They have also opened the umbrella (so to speak) and the range of pervasive developmental disorders is so broad that many children fit on the spectrum that wouldn't have when you and I were growing up.

Thank you for your thoughts and your kind words. Yes, it is hard, but I also know that I am never given anything more than I can handle.

I can't comment on vaccines or toxins or environmental causes because I just don't know. I believe that they have something to do with this...but when it all comes down to it: TODAY I DON'T CARE! That may sound harsh and I don't intend for it to. Today, what "caused" this does not matter to me. Today, I need to concentrate on how to make it better and how to help my son be the best that he can be. Someday, the causes may become part of my world...maybe when A wants to have children...I don't know. Today, I can't focus on that because it does nothing to help what I deal with on a daily basis.

Sometimes Sophia and Feliz, thank you both for your kind words and your prayers. I am part of an AMAZING group of women who want nothing more than to help change the world for our kids. If you have a moment please check out Embracing Autism. This is the way that I can be active in advocating for my son and children like him.

Wheres My Angels, I think that of all people in this world, you probably understand this more than most. You are right, Mr. Savage has, obviously, not been touched. I think that from the moment he said those words he opened up the doors to become touched by autism. I only hope that he has learned something...

"The Queen", thank you for teaching your children compassion. My son (and others like him) need nothing more than that. A needs kids that are willing to play with him, understand that he is "different" and accept him for who he is. It is so important that children are raised to be caring, compassionate human beings. You do that! Thank you!

My 2 Boyz, I thank you for not feeling pity, because, honestly, I am SO blessed! I'll take a cyber hug any day you want to give one :)

Trish, you are probably right. What was said (and then interpreted by the rest of us) by Mr. Savage was probably not his intended meaning. Had I heard the whole segment I may feel very differently. And let's face it, these men (Rush, Howard Stern, etc) are put on the air for a reason. These are the types of things that people want to hear from them. I do not believe he should be fired. And, as I mentioned in the end of my blog, while the remarks were ignorant and insensitive, he has educated so many people with what he said...I will take that.

Swirl Girl, there are more days that I want to "chuck it all" than you can imagine!! I am SO blessed to have amazing family and friends in my life that are supportive of us. I am also MORE THAN BLESSED to have a school system that works wonders with my child. Special Ed teachers, OT teachers, Speech Paths, One on One Paraprofessionals...THEY ARE MY SAVIORS! I COULD NOT do this on my own!!

Dawn, I am trying so hard to believe that what Mr. Savage said is going to bring so much education to so many people's eyes. But you are right, those who speak about issues they have no education on....oh man, they frustrate me more than you can imagine!

And last, but CERTAINLY not least, Nicki, you are my rock. I can do this because you do it. Together we will piss and moan and love and feel guilty and work harder and harder every day to make sure that our children are amazing young men who make amazing fathers and husbands. We rule :)

I thank you all for your support. One of the things about this blogoshpere that never ceases to amaze me is how people from across the globe will show up in droves to tell you how wonderful you are! Thank you for being there, thank you for not pitying me, thank you for sharing your stories! Keep 'em coming!

7/29/08

Dear Michael Savage: Come live my life!

About two weeks ago radio talk show host Michael Savage made some insensitive, ignorant remarks regarding autism. Honestly, I had enough going on in my life at the time and decided to ignore it. I've got enough stress, I don't need to add more, knowing that the rest of the autistic community is going to voice their outrage.

However, a few nights ago I couldn't sleep. I was up at 2am watching stupid television...Entertainment Tonight or The Insider or whatever - it was one of those stupid tabloid shows. Whichever show it was aired a clip on Savage's remarks which I quote:



Now, the illness du jour is autism. You know what autism is? I'll tell you what autism is. In 99 percent of the cases, it's a brat who hasn't been told to cut the act out. That's what autism is.... What do you mean they scream and they're silent? They don't have a father around to tell them, 'Don't act like a moron. You'll get nowhere in life. Stop acting like a putz. Straighten up. Act like a man. Don't sit there crying and screaming, idiot.' Autism—everybody has an illness. If I behaved like a fool, my father called me a fool. And he said to me, 'Don't behave like a fool.' The worst thing he said—'Don't behave like a fool. Don't be anybody's dummy. Don't sound like an idiot. Don't act like a girl. Don't cry.' That's what I was raised with. That's what you should raise your children with. Stop with the sensitivity training. You're turning your son into a girl, and you're turning your nation into a nation of losers and beaten men.


I have to say, Michael Savage, come live my life.

I am not going to talk about all the research that goes into autism (which is not nearly enough for the epidemic that it has become - 1 in 150 children), I am not going to talk about the YEARS it took to get A diagnosed (he was 5 before anyone aside from his pediatrician took us seriously), I am not going to SCREAM about the services we started receiving when A was 9 months old to "reverse" what autism has caused (intense weekly therapy to make him talk and look you in the eye and increase his motor skills)...I won't share that because NONE of that describes what we live with every day. None of that talks about what we, parents of children with autism, deal with on a daily basis.

As I write this I have gotten A out of the refrigerator 4 times. I have watched him eat 4 yogurts today. This is not because the child is hungry, it is not because he has Prader-Willi Syndrome (I know, we have had him tested) it is because he has an obsession with food. He finds something he likes and he can't stop eating it - all or nothing.

I have taken him to the beach, pulled him away from another boy's toys kicking and screaming, watched him knock over a mother and her child (that we do not know) trying to "say hello" while giving them a hug in the water and heard him talk incessantly about "Scout" the two year old that was kind to him and he has adopted as his new "best friend".

I have fed him every meal and watched him pick and choose what he ate while going back to the fridge for something I didn't put on his plate. He will eat anything and everything ON HIS TERMS.

I have pulled him off the counters 3 times, once off the fridge because he wanted something on top of the fridge or to flood the counter with the sprayer hose on the sink or to get something out of the freezer.

I have watched him hit his brother in the head with a toy for no apparent reason. Z has taken more abuse than any child should at the hands of his little brother.

I have listened to his shriek at a level only dogs should be able to hear because Z looked at him. The neighbors moved out a few months ago...there were numerous noise complaints.

I have changed his diaper 5 times, his swimmer once and gotten him dressed twice. His motor skills (and attention span) do not allow him to get dressed on his own and he is not potty trained (although yesterday we made it 5 hours in underwear).

And I have disciplined. I have put him in the corner, I have taken toys away, I have made him sit on the picnic table at the beach, I have threatened, I have yelled and I will be honest, in the past, I have tried spanking (and stopped because it doesn't work)...

This is my day...just today.

Tonight will be no different. You see, A does not sleep. He wakes anywhere from one to a dozen times each night with more energy than that stupid energizer bunny. I cannot remember the last full night of sleep I have gotten (in fact, 3 years ago I was in a major car accident in the middle of the day because I fell asleep at the wheel).

And there is rarely a break. While my family loves my children, I rarely EVER leave them with anyone. I am terrified of the havoc that ensues...and A gets terrified that I will"never come back". And, let's face it, nobody can watch my kids as well as I can...need I remind you of what happened in October?

I need to make VERY clear that I am one of the fortunate ones. There are many things that A does that children with "more severe" cases of autism do not.

My child speaks and he speaks clearly. He tells you how he is feeling, why he is feeling that way, when he will stop feeling that way...he talks like there is no tomorrow. Matter of fact, he doesn't stop talking. He even talks in his sleep. Whether or not what A is talking about makes any sense or has anything to do with what you are talking about is a very different story.

My child reads. He reads at a level that no kindergartner should read at. He reads everything and anything. He reads street signs while we are driving, emails over my shoulder, my blogs and ANYTHING else he can see.

My child is VERY social. Honestly, a bit too social. He could be taken in a moments notice. He would walk away with anyone. But that is because he loves people. He wants everyone to love him. But he has NO idea how to be a friend. Adults love him to pieces, children are annoyed by him or scared.

My child has no fear unless it is extreme fear. It is all or nothing, black and white. There is no gray area. He has no idea of what safety is. He will run out into the street but be terrified of getting run over. He will walk out into the water over his head but is terrified I am going to dunk him. He has an obsession with all emergency personnel and their gear (trucks, cars, stethoscopes, etc) but is terrified he is going to be arrested.

He has no boundaries. He does not know how to take two steps back when he is talking with someone. He hugs everyone. He forgets that someone might not like to be touched. He doesn't understand that the neighbor does not want him in his home. He forgets that his private parts are his and nobody else wants to see them or hear about them.

My day consists of being on high alert - all the time. There is no rest. I must be sure that I have his hand if we are anywhere near the road. I must be sure that I get him out of the fridge every time he runs for it or he will eat the raw hamburger sitting in there to defrost. I must be sure to stop him from tackling other people, "stealing" their toys or eating their food. I must avoid all dirty looks I get in the grocery store/post office/restaurant/playground because people want me to just discipline the naughty kid who screams when I say no or runs behind the counter or screams "FU@&ER" at the top of his lungs...


And you may wonder why he doesn't keep himself occupied. Me too...he has a room full of toys, trains and planes and books and stuffed animals and everything in between. He may play with one toy for 15 minutes - and he will play the same thing over and over and over,drive the same truck on the same path, bang the same two cars against each other... But he is not interested in really playing with his toys. He will not play with another person. Again, he is black and white and he either plays his way or no way and more often than not - it is no way.

And through all this, I see an angel. He wants nothing more than to be a good boy that everyone loves. He tells me on a daily basis how much he loves me and that I am the "best mother ever". If you gave me a pill to "fix" him I am not sure I would give it to him...because then I might lose the child that I love so very much.

Having said all that, Mr. Savage, please, come and take a day. I swear, if your discipline works, I will NEVER AGAIN mention the word autism. I will never believe a single person that says their child has autism.

Honestly, I could use a few hours to grocery shop without a child that eats/opens/throws everything I put in the cart. I would love to use a public restroom without a child that opens the door while I am sitting on the toilet - pants around my ankles. I would love to go to a movie where I could actually sit down and enjoy it rather than walk in and out 5+ times with a child who can't sit still. And I am sure that Z would love to have a day alone with his mommy.

And, in the end, I will become your biggest fan. And I know that I can say that and ask that of you, without any fear of my child being changed, because it doesn't work.

Lastly, I want to thank you. I want to thank you for making those statements. I want to remind you that no press is bad press. Your insensitive, ignorant remarks have caused enough of an uproar in the autistic community that idiots like you have now been educated. You have affected more people then you can imagine...thank you for helping to change to world for my son.

7/28/08

Beautiful weekend

After about two weeks of rain, wind, tornadoes, lightning and thunder we FINALLY had a sunny day on Saturday. I was incredibly grateful because the boys and I were heading to a BBQ and if it rained it would be indoors - not a good idea with A.

So this is where we spent our Saturday:

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And I promise you, the pictures do not do it justice!

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The boys had a great time:

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And A only gave me one really good scare. He refused to go in the water so instead he and I sat on the dock while Z swam. In a second he took off...flying down the dock with no intention of stopping. I just KNEW he was going to run right over the edge and I was going to have to dive in after him...but he didn't. He stopped at a couple that were enjoying the sun to show them his firetruck. Ugh!

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There was a great swing set that the kids enjoyed most of the afternoon. It was, however, directly under the trees and had accumulated a number of spider webs. Both my boys are terrified of spiders. Z tried to clean it up to the best of his ability with a stick but every once in a while A would let out a shriek because one got too close to him.

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I did learn that as long as I am alone with my children I will never again have the opportunity to carry on a conversation. I left at least three conversations right in the middle to chase A down. I swear that he knows when my attention is not completely on him and he takes full advantage of it.

The people who say that autistic kids are dumb and don't have the ability to learn - well, the never met my kid (or the other autistic kids that I know). He is too stinking smart for his own good (and mine for that matter).

So, unfortunately, I was not able to enjoy my fellow auction volunteers as much as I would like but we did have a great time.

Sunday we took off for the movies. When I checked the weather report on Saturday it said rain all day for Sunday. I figured it was a great time to spend the day indoors.

When we woke up it was sunny. When we got to the movie theater it was sunny. All during the movie it was sunny. Driving home from the movies to Grampie's was sunny. On the way home from Grampie and Nana Sue's the skies opened up. In fact, it was kind of a scary ride - downpours, lightning, hydroplaning...but we made it.

Nana Sue came with us to the movies. Another thing I have learned is that A and movie theaters do not mix. He has every intention of sitting still and he really wants to see the movie but an hour and a half is way too long.

Consequently, I do not bring Z and A to the movies by myself. It would mean leaving Z in there alone every time A decides it is too much for him or taking Z out...which isn't fair.

Thankfully, Nana Sue is an amazing grandmother and loves spending time with the boys. I also think that she enjoys those kids movies as much as they do. Anytime I am thinking that the movies are a good idea I give her a call.

So the four of us headed out to see Kung Fu Panda.

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From what I saw of it (which was maybe half), it was very enjoyable. It was a little more violent then I expected and I was a bit fearful that Z would try and become the panda...but all is well thus far.

Bedtime was eventful for me. Kirby usually puts the kids to bed (mainly A). A does not do well with change and Mommy putting him to bed is change. We spent both nights fighting the hour+ before sleep FINALLY came. I threatened him with violence (not out loud, but in my head), I threatened him with friends (mine, not his, I told him that J would call and be very angry that he wasn't sleeping), I threatened him with school (although taking school away would be more of a punishment to me than him). Eventually he knocked himself out...or I did from the constant banging of my head against the wall...

It was an eventful weekend. The kids were, mostly, worn out. We had a great time. And, honestly, I am ready for my weekend off!

I NEED This - SITS Contest

You know how your kids (or kids you know) whine..."I NEEEEED IT" about whatever it is that has sparked their interest in the store, or on the TV commercials, or out of the blue. Like: "I NEEEEEED that new Nintendo DS". And you reply (or I reply): "No, you don't need it, you want it, and there is a difference".

This is one of the many reasons that I am thankful for PBS and why I volunteer so much time there (okay, really that is just a great excuse to spend so much time there - I do ABSOLUTELY love it). PBS doesn't have those commercials that trigger the needs or wants.

When I saw this I had one of those I NEEEEED moments. I NEED THAT IPOD! You all know that I have a bit of an obsession with music (and if you don't you can go here, here, here or here). and you all know that I have been looking to find the best songs to put on my MP3 player.

What you may not know is that my MP3 player has been acting up lately. It shuts down whenever it feels like it. The batteries die frequently. And as I mentioned here I tend to look like a junky trying to get her fix when it won't work when I NEED it to.

I have been looking into buying a new MP3 but I can't talk myself into spending the money. I am MORE THAN frugal when it comes to spending money on myself. When it comes to the kids or my business I tend not to worry as much but when it comes to me I rationalize every reason and talk myself out of it.

Have I made it clear enough? I NEED THAT IPOD!

So here's what I need from YOU:

1) If you are not already a member of SITS go here and leave a comment. (The great thing about SITS is you find wonderful blogs to read and, if you are interested, often times it increases your readers and your comments).

2) Make sure you mention "CRAZY MOMMA" sent you in your comment.

3) Put this little label on your blog:



4) Go read some blogs!

Again, I NEED THIS IPOD! So make it happen :)